Isaacs by Serrano

Dr. Daryl Isaacs by Andres Serrano, new work by artist and patient.

I am writing a blog post to bring things up to speed. It’s in the works.
Thanks for all of you for your support.
Much appreciated.
Paul

 

 


We made our goal for Kickstarter!

We’re still reeling with boundless gratitude. Thanks you all. People would still still like to back us as, even  after Kickstarter closed the gate. If you go to the Kickstarter site – we will still honor the same rewards and pledge levels until further notice.

We love you all, and you can still donate. Just click the MSMC button below and follow the secure process toward official backing for Everything is Going to Be OK.





Though Kickstarter has closed, for those who come to our side after, there will be continual updates about our progress on this website and your donation will be acknowledged.

Again we love you, and onwards.

http://thedianerehmshow.org/shows/2012-06-06/amanda-bennett-cost-hope

Quoted from the NPR copy on the Diane Rehm Show:

Terence Bryan Foley was an American expert on agriculture and Asia who earned his Ph.D. when he was in his 60s. He played more than 15 musical instruments and spoke six languages. He was funny, eccentric and beloved by his wife, award-winning journalist and editor Amanda Bennett. In a memoir, Bennett writes of their marriage, their travels and their battle for more life together after Foley was diagnosed with cancer. She takes us on a journey through the complex and often maddening American medical system. And she questions whether the emotional, physical and monetary price was worth it.

Thanks to friends! I was made aware of this interview from friend, major backer, and Associate Producer for Mercer St. Medical  of  Joleen Grussing via her friend  Maria Crocitto, who wrote to Joleen about this interview and Amanda Bennett’s book. Here’s what she said:
“Interview with Amanda Bennett, based on her book on the cost of hope. Tracked history of husband’s cancer treatment cost, but had some nuggets relevant to your film, i.e., the craziness that if you don’t have insurance and pay out of pocket for a procedure (cash only should be cheaper!), you pay more than the insurance company would (yes, bulk rate, but still? ). “

Lisa Levy has been a working conceptual artist since we met in the 1990′s and since then she has moved into performance vis a vis the stand up comedy circuit AND with Shroeder Romero Shredder Gallery in New York. She’s currently on Gawker.com Artists Top 1000, worked live with GalleryBeat as a host (Dr. Lisa) and correspondent, and is has provided us with the signed special LTD edition digital print on 8.5 x111 inch paper at the $150 pledge level. Fantastic level, really, since you get one music CD, two film DVD’s, one Spencer Tunick photo and one Lisa Levy print. Get two and have your Xmas shopping halfway finished! This is cheaper than a pair of Manolo’s, so boot that up. Glide into the Kickstarter for Everything is Going to Be OK  (sil vous plait).

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One of our Kickstarter rewards is a limited edition print of Brian Alfred’s portrait of Dr. Daryl Issacs, the family physician featured in our documentary. Our Kickstarter rocks because you get real, bona-fide art from NYC artists who are championing our cause and Brian is one of them.

Now, some of you may know Brian’s work, bit if you don’t, check out Brian’s work at his fantastic site Paintchanger by clicking on the image below. It’s a screencap of his site that showcases his art in a wide array of media.

Some of may not know that Brian was in a postmodern, post-punk jazz band called 33.3. Here are samples on Amazon from their début CD in 1999. While I live in Greenpoint, Brooklyn, I’ve been having Park Slope on my mind. This made me think of this track, “An Evening in Park Slope” from ‘Plays Music’, which makes me want to mix myself a cocktail and enjoy this warm spring evening outside:

 

 

I’m waiting for the doctor. It’s 7PM. There are two seating areas, one in the front and one in the back. In the front the chairs are about like tiny theater seating only along the wall. I sit in the back area, you can’t see it. Hardly anyone ever sits back here even though it’s a lounge with big soft leather couches.

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We’ve just launched the Kickstarter. There’s great art available as rewards, so go check it out.

 

via The Brian Lehrer Show

 

This one goes out to Don Chambers. He’s the opening soundtrack for “Mercer Street Medical Case”, directed by Paul Hasegawa Overacker, produced by Ken Kambara, and co-produced by me. It’s his song “Red in the Face” off the CD , “Don Chambers & Goat”. He’s been very good to us and we’ll be promoting his music through all our project PR in social media.

Link to NPR story.

“Nine national medical groups are launching a campaign called Choosing Wisely to get U.S. doctors to back off on 45 diagnostic tests, procedures and treatments that often may do patients no good.”—Richard Knox, NPR

This week, we had the good fortune to have a minute to chat with Dr. Issacs at Mercer Street Medical. Paul and I heard the doctor decry the state of the profession, where medical tests serve as a proxy for experience and judgment. We will have more on his views of how tests are used in the current healthcare system in the US on a future blog.

The NPR story by Richard Knox above doesn’t stop at medical tests, but extends to treatments. Dr. Lowell Schnipper, a cancer specialist states that treatments for that disease need to be more carefully considered:

“When somebody is literally bed-bound and unable to walk or take care of himself, it’s almost futile to use cancer-directed treatment and will probably have negative consequences.”

While there will be talk of “rationing” of care, a key issue is what are the realistic expectations of therapies with respect to patient well-being. I’m reminded me of a manager at a large pharmaceutical company based in California who scoffed at the French for their callous attitude towards terminal disease. I’m paraphrasing here, but his take was that in France, if one is diagnosed with cancer in an advanced stage, it’s time to get one’s affairs in order, while the “US system” and the therapies his company offered grants extended lifeweeks. While this certainly be true in the strict sense, the quality of life and the potential for huge out-of-pocket costs for drugs not covered by insurance should also be factored in.